12 May - ME/CFS Awareness Day

Did you know that the 12th of May is ME/CFS Awareness Day?

I was going to do something to promote ME/CFS awareness in blogger world. If you are suffering from this illness, you know that we can not march on street or knock on doors.

Last year, I was in bed because I am severely affected by the illness and also I was starving due to Domestic Violence. (Now the DV is out from my life, this year is a bit better than last year. lol) I was very weak, had no money and no support. On ME/CFS Awareness Day, I hopelessly watched local TV news showed cheerful fund raising event organised by one of cancer patients support groups. There was absolutely no mention about ME/CFS in anywhere.

It is not my natrue to do nothing, but complain. If I am not happy about something, I would try to change the situation. I was planning something, but it may have to wait until next year as my condition is not good at the moment.

One thing I was going to ask you was to post the following symbol on your blog on the 12th of May. I borrowed it from cfssupport4sufferers. I hope they do not mind. I was going to create something by myself, but… it has to wait until next year… (Maybe I could ask RachelCreative to provide one. lol)

I feel it is very important for me and fellow sufferer that people know about this illness. I can not summarise the reasons in short and my brain is not really functioning now. So once again, it maybe done next year.

I am hoping that awareness will provide ME/CFS sufferer with;

• Cure
• Physical help for everyday life (some live alone like me, and some are also fighting a lonley battle because their family and friends do not understand.)
• Understanding and compassion from general public and medical community

I will try to post a page with links to ME/CFS websites and information before the 12th of May.

And here is the symbol I borrowed. (Please do not use this symbol as we have specially designed badges for this campaign now. Thanks to RachelCreative Please keep reading.)

Please check ME/CFS Awareness page for some link.

With kindness of RachelCreative, I am updating this ‘no longer invisible’ campaign. Now we have specially designed badges for the Awareness Day. She inspired me more with her ideas about this campaign and we have full permission from her to use her badge for the ME/CFS Awareness Day campaign.

Please check her blog for ideas to increase awareness of this illness. And I thank her very much for her time and creativity for designing the badges for this special purposes. I am still overwhelmed and speechless.

Thank you again, Rachel. And here are the budges she created for us. I absolutely love them.